savstrongincMay 15, 20211 minEhlers Danlos Syndrome DiagnosisPatients with Ehlers Danlos Syndrome are often times misdiagnosed, mistreated, and overlooked BEFORE their diagnosis. I was diagnosed at...
savstrongincMay 12, 20211 minEhlers Danlos Awareness MonthMay is a special month... Ehlers Danlos Syndrome Awareness Month!!! The rest of the month, I will be sharing some personal stories,...
savstrongincFeb 28, 20212 minRare Disease Day 2021Today is Rare Disease Day. A day to celebrate the overlooked, under appreciated and...RARE!🤍 Like many others, I am RARE. My case is...