Patients with Ehlers Danlos Syndrome are often times misdiagnosed, mistreated, and overlooked BEFORE their diagnosis. I was diagnosed at...

May is a special month... Ehlers Danlos Syndrome Awareness Month!!! The rest of the month, I will be sharing some personal stories,...

Today is Rare Disease Day. A day to celebrate the overlooked, under appreciated and...RARE!🤍 Like many others, I am RARE. My case is...

A fun introduction to get to know ME!