Ehlers Danlos Awareness Month
May is a special month...
Ehlers Danlos Syndrome Awareness Month!!!
The rest of the month, I will be sharing some personal stories, facts, and posts in order to raise awareness for a disease that has impacted me so greatly.
Today’s post will be an inside look at some of the things I struggle with due to having Hypermobile Ehlers Danlos Syndrome. I hope that by sharing my story, and the things I struggle with daily—my own community will learn something new, and be willing to support the EDS community!!
Hypermobile Ehlers Danlos Syndrome is a genetic connective tissue disorder caused by a defect in the collagen. hEDS has MANY complications and bizarre symptoms, I struggle with...
- extreme joint pain
- extreme joint flexibility
- soft, loose, & stretchy skin
- joint dislocations & subluxations
- gastrointestinal issues
- easy bruising
- fragile skin that doesn't heal well
These are just a few of the things that I struggle with daily, living with hEDS. It took me 7 years to receive a diagnosis which is very short in the EDS community. Follow my journey by hopping over to my Instagram accounts @savvy_sc & @savstrong_org and look out for more blog posts coming this month!